En-Fold is a growing charitable incorporated organisation

providing what we consider to be an essential service to the community impacted by autism.

We believe all people deserve an equal chance to flourish, to achieve this, we act a system navigators ensuring better support, better communication and connecting people to the right support. 

En-Fold is a growing C.I.O

providing what we consider to be an essential service to the community impacted by autism.

We believe all people deserve an equal chance to flourish, to achieve this, we act a system navigators ensuring better support, better communication and connecting people to the right support. 

We recognise that going through the diagnostic pathway as an adult is a long and challenging process, often resulting in questions and answers. For parents and carers of children and young people, it can be a time where they get lost in the diagnostic system and are often confused and isolated after the process has ended.

We want to ensure that all children, via support to their parents, can access the best services, information and support for them. We also want to ensure all individuals receiving a diagnosis in adulthood, find the right information and support.

Our Story

En-Fold became a charitable Incorporated Organisation in December 2018, to support the autistic community of Northamptonshire. En-Fold addresses the issues of isolation and lack of information experienced by so many. Acting as system navigators ensures better support, better communication, and, most importantly, connects individuals and families to the right support. All people deserve an equal chance to flourish.

Our organisation is born out of lived experience, which continues to be the central focus of how we operate. Our founder journeyed through life to adulthood, often confused and wondering how she fitted into the world. The social rules, the humour, the unpredictability that all too often exists has baffled her for many years. With three children, both of her beautiful girls on the Spectrum, they are further fuel to the desire to see how the world of Autism is understood.

Our Values

Supportive

Informative

Educational

Positive

Our Team

Photo of founder Diane

Diane Johnson

Founder of En-Fold

Diane has a wealth of knowledge and experience in disability and a passion for supporting families. Training includes a degree in youth and community development and a further BTEC level 4 in voluntary sector management, additional workshops, and conferences with a specific disability focus and a Level 2 Certificate in Understanding Autism.

Previous roles have included being a foster carer with all the accompanying training, a voluntary sector infrastructure support advisor, a team leader for a day centre for adults with LD, and a project coordinator for SCOPE supporting families with children with disabilities.

Diane also has previous experience of setting up a charity and a good eye for detail and planning. Having been approached by a group of parents of children with High Functioning Autism, Diane was instrumental in this and sourced funds to enable family days out. This group has now been running for 10 years, with regular monthly meetings and school holiday activities for the whole family.

As a parent of two girls with Autism, Diane has a real understanding and empathy of the challenges parents face in navigating the system with a particular interest in the female presentation. Diane herself has Asperger's. While this poses certain challenges, it also brings a real insight, determination, and drive to the role.

Our Trustees

Photo of board member Eleanor

Eleanor Jeans

Eleanor Jeans is an ordained Church of England priest. She has previously worked in education as a violin teacher and for churches as a schools and children's worker and music director. Eleanor's leadership role in the Church ensures a strong pastoral and people management grounding, with a deep understanding of and frequent contact with vulnerable community members. Eleanor has a particular passion for supporting those who are single.

Photo of board member Helen

Helen Eales

Helen is a private Speech and language therapist. Helen has a great understanding of children and young people's needs on the Spectrum and their parents. With her own child on the Spectrum and personal knowledge of the system, Helen is well placed for offering an empathetic understanding of the needs families face.

Image for board member Ruth

Ruth Webster

Ruth is a mum of twin boys, one of whom has cerebral palsy. She became involved with En-fold having received support first hand from Diane, who helped as they spent three years navigating the health service to achieve all of their son's diagnosis. Ruth wanted to give something back and help other families access the right help in the timeliest ways possible. Ruth brings the experience of strategy and policy from working over fifteen years in public services.

Photo of board member Kirsty

Kirsty Johns

Kirsty is a practice development nurse within the children's ward, responsible for training and mentoring alongside her clinical role. Much experience of liaising with family around children's disabilities and illnesses, Kirsty brings an understanding of the NHS and its processes. Having also been the ladies circle's chair, a good knowledge of committees, organising and fundraising has been obtained.

Photo of board member Lionel

Lionel Boyce

Lionel Boyce is a social work manager with 38 years' experience of working within the childcare arena as both a practitioner and a manager. He is currently the Registered Manager of a local independent fostering agency. He has a strong interest in the educational needs of Looked After Children. He is also committed to ensuring children's education progression from underprivileged backgrounds, especially those from African and Caribbean backgrounds. He believes strongly that education and the sharing of, are how those who are underprivileged can progress and improve their standing in society.

Photo of board member Corrine

Corinne Urry

Corinne is a person-centred counsellor in private practice in schools and works with those with additional needs or genetic conditions. A part-time counselling tutor at Tresham college, teaching counselling skills to trainee counsellors she has a wealth of knowledge and expertise. Previous experience has included primary and secondary education, with a particular interest in special needs.

Photo of board member Mike

Mike

In 2020 Mike, at 35 years old, was late diagnosed with ASC and received support from Diane and En-Fold.
En-Fold was a lifeline of support for him. Their work has given him the drive to positively impact the autistic community as En-Fold has had on him. With his professional experience within Hospitality Management and Training/Coaching, Mike has a passion for facilitating environments that enable people to learn, understand and develop themselves. He joined the board to utilise his lived experience and skills to support others and help the autistic voice be heard clearer and louder than ever before.