What is autism?

Autism is a lifelong neurodevelopmental spectrum disorder

Everyone with autism has a unique presentation while sharing fundamental areas of difficulty. The estimated number of people with autism is around 700,000 in the United Kingdom.

This section aims to cover the basics of autism and other areas related to autism; some of these sections are links to other websites.

DiagnosisEducationEntitlements

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Case Study

ASD Diagnosis

Cheryl provides a lived experience perspective, describing what Autism is to her.

Click here to read more...

Where Did I Go?

A poem from lived experience, by Julie, an En-Fold mentor/befriender

Look at the mirror and what do I see? There’s a stranger staring back at me

Once full of dreams, of ambition and hope - now wondering how on earth I will cope

Always in a hurry, never ending worry.
I have disappeared and that’s really weird

Now don’t get me wrong I am lucky indeed - I have a house and my family

I am truly thankful and know I am blessed but sometimes I want to be free like the rest.

At times I look and really do stare, wondering if there's any of me left in there

The person before I became a mum
The person who once laughed and had lots of fun
The person who loved to stay out late, not a care in the world and could get in a state

But here I am and as much as I moan, my kids are amazing and love is our home.

I must take the time discovering me. It’s a lesson my children really must see.

To look after yourself and take a rest will help you feel good and be at your best.

Julie

Further Information

Language and Terminology

Pathological Demand Avoidance

Autism and BAME People

Autism and Gender Identity

Note: En-Fold is aware of the outdated use of the word 'BAME' in this section we have used the title of the webpage from the original source website.

Local Autism Charities

Action for Aspergers

Team Work

Autism East Midlands

NAS East Midlands

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Disclaimer: En-Fold does not endorse treatments, interventions and therapies but lists them so people can make informed choice. This site is for information purposes only and is a starting point for readers to look into options that may fit or resonate. Remember, therapies for autism, like any condition, should be discussed with a trusted medical practitioner or certified therapist before use. All information, data and material contained, presented or provided here is for general information purposes only and is not to be construed as reflecting the knowledge or opinions of En-Fold, or as providing legal or medical advice. All treatment decisions should be made by the individual in consultation with a health care provider. Case studies provided are done so in good faith, and based on the personal experience of the individual submitting them. En-Fold are in no way endorsing the establishments that are mentioned but offering peer reviews to inform readers.